

How can I find the words to express my anger, frustration and misery towards the universe, towards fate for giving my son grand mal (now called tonic-clonic) seizures. Fuck, I am so sick of it. I am helpless, guilty and sad.
Everytime he has one I feel like a little piece of him is floating off into the ether, never to be heard of again. I pray his employers won't find some reason to sack him.
And yet, I am strangely grateful. He is alive. He is functioning. His true friends have stuck by him.
Life moves on...
So here's a funny little thing that happened last night. I took the Warrior Princess shopping for her first ever high-heeled shoes for the 6th grade completion ceremony. She proudly walked around in the house with them on, and then exclaimed "Hey mom, these shoes make your butt wag."
That's my girl.